Saturday, January 29, 2011

She has a Wonderful Heart

As I've gone through this process the last few weeks, I've been clenching my fists a lot.  My mom pointed it out to me a couple of times.  I guess it's a habit I've started.  When I feel I'm about to have something painful / scary / or hard done, I clench my fists and close my eyes and just picture my 3 beautiful kids.  I picture to myself how thankful I am it is me going through it, and not me standing next to them watching them go through it.  That truly helps get through the rough stuff.  I just can't imagine having to stand by and watch your own children suffer.
   But when I open my eyes, and it's over...I see my mom.  Standing there watching me go through it.  I'm her little girl.  She is standing by watching her little go through it.  And then it makes my heart hurt for her.  This whole thing I know has not been easy for her, but she always tries to make every situation better.  Let me give you a little history to this:

When I was a teenager we lived in San Leandro, California (just across the bay from San Francisco).  If we ever needed to go to San Fran or to the west side of the bay we had to cross a toll bridge.  It would either be the Oakland Bay Bridge or the Dumbarton Bridge.  Once you pay the toll and enter the bridge you have to stop at a light and wait your turn to go on.  So my mom thought of this fun idea.  She said...
" Let's pay the toll for the car behind us too.  And then when we go up and stop we can look back and see their reaction."
  So my brothers and I piled in the backseat so we could watch out the back window.  It was so fun to see their expression and look of surprise and confusion when they toll man would just point up to our car and tell them we had covered their fee.  They must have been surprised because not a lot of people did that.  But it was a game my mom started and we did every once in a while when we crossed a toll bridge. (Today it's $6.00 per car to cross, back then it was still $5.00 to cross----or $10.00 every now and again).
     Then one day she decided we could try another game.  We were at a McDonlad's drive-thru and she said "Let's pay for the persons order behind us".  (Risky little game to play in Utah at McDonalds :),
but we did.  It was so fun to see the look on that moms face when her Happy Meals were coming out for free.  The funny thing is, when we drove away I had such a good feeling inside, ya know, it's always so nice to be surprised with something like that.
      So jump ahead today, we obviously don't do that EVERY time we go through a drive thru, but every now and again I will say to my kids....should we pay for the car behind us??  Our favorite is at Sonic when someone is sitting at the tables waiting for their order and you pay for it for them through the drive thru, because then they have no idea where it came fun.  My kids love it when they see the missionaries there because they're a given....we always buy a little secret  treat to send out to the missionaries.   It's just a way we've paid forward a wonderful game my mom taught me.
So another example is yesterday.  We met a man named John in the BMT clinic.  He's gone through chemo once before, and now is working towards getting a bone marrow transplant.  He lives in Idaho, but has been staying in Utah for the last 4 months.  My mom was immediately worried about John.  I'd see her scoot her chair right over next to John so she could talk to him.  Then she told all the nurses "I am John's support person, so if he needs anything let me know".   As my mom was talking to John my nurse came over and told me (with tears in her eyes) how nice it was for my mom to be so kind to John and that John had had a really hard day and was alone.  I think my mom is just in tune to what people need.
   Next thing I know she's opened up the mini fridge and "mixing drinks" for everyone and bringing them around.  She called them "Sunshine Drinks" you could get a "sun setter"  or a "sun shiner"  (I'll post the recipes at the bottom).  Pretty soon I look around and there is a party of patients, supporters and nurses gathered around my bed.  Even John got down from his comfy chair and pulled a folding chair over closer by us while he finished his last blood transfusion. 
   One of the head doctors walked in (he was fairly new to Huntsman) and he said he thought my mom was the lady in charge of the whole place.  She said "Would you like me to make you a drink?".
  So yep, that's my mom.  I've learned a lot from her.  She has a wonderful heart.  And even when her heart is sad, because she's watching her little girl fight cancer, she's still willing to make you a happy drink and try to brighten your day.

This is a pic I hate to put out there, because we all want our pics taken when we look our very best.  But this is what cancer looks like.  This was day one when I slept all day.  I would wake up freezing cold because even though they warm your blood up before they put it back into you, it's still cold.  So this is me sleeping with about 15 warm blankets my mom had put on me to help keep me warm.

And this is John.  On day two I was able to collect over 4 million stem cells, John was only able to collect 300 total.  It was a hard day for John and he has a rough road ahead, so please include John in your prayers.  Heavenly Father will know which John he is---he's the one from Idaho.

Thank you mom and Tom for being such wonderful care takers and helping me get through this process.  Mom, thanks for making it fun when I felt good and making it comfortable when I felt icky.  Thanks for distracting me so I wouldn't miss my family and reminding why I'm doing this all those times I wanted to give up.  And Tom---thanks so much for giving up your favorite spot on the couch, your favorite bed, and your time with your wife so she could be with me, and for always making sure I had everything I needed.
I love you both so much!

mom & Tom


Sunshine Drink Recipes

The Sun Shiner  1/2 c Sprite,  1/2 c orange juice

The Sun Setter  1/2 c Sprite,  1/2 c grape juice

Pour into Styrofoam white cup, fill with hospital ice and top off with a bendy straw!  Voila!

Friday, January 28, 2011

What day are we on? It doesn't matter cuz I'm DONE! :)

Where have you been????

You were wondering, right??  Well, I'm going to tell you where I've been, what I've been doing and every detail about it I can remember.  So, sit back and relax..this may be a long post! :)

So the last time I posted (Monday) I had started my Neupogen shots.  I expected them to be hard...they're the same drug as Neulasta, only a little more intense and shorter lasting.  So I was expected some pretty decent body aches to occur, but I can deal with that.  I was a little concerned Saturday night when Huntsman sent a courier to my mom's house with  a large box FULL of medical supplies (including 6 small vials of neupogen that were to last 2 days-they were sending the rest out later).  So Sunday I wasn't overly surprised when the nurse got to my mom's house and told me she would be giving me 2 (two) shots per day.  Yay me I thought ---not really. 
   So Sunday I got 2 shots of neupogen, and then Monday she had the gall to come back and give me two more.  The nerve! 
     At this point I was definitely feeling achy, but nothing I would call horrible.  Maybe a 6 on the horrific scale.  I was told the only pain meds I could take once I started the neupogen shots was Oxycodone.  Absolutely no Tylenol or Ibuprofen (it somehow messes with the collection process).  So Monday night, as I was feeling a little achy (and brave I might add) decided to take one oxycodone along with my Ambien and get a great nights sleep and get ready for my 3rd day of shots's where everything changed.

I woke up Tuesday and was so sick, I could not get out of bed.  Along with the pain I had been feeling, I had a migraine headache I was completely nauseous my face felt like there was so much pressure it was about to explode.  I figured I had caught some type of bug, since my white blood cells had dropped so low.  I laid in bed ALL DAY.  My brother Justin and his wife Amy came over to check on me and to  let the home health nurse in (yes, I still had to get my 2 shots that day).  I thought I might have had a reaction to the oxycodone.  See..this is why I stick with Ibuprofen-I know what to expect.
  Anyway, I moaned and groaned through that day hoping I would get a good nights sleep and wake up feeling  better.
   When I woke up Wednesday, I felt worse.  I had tossed and turned all night.  It was so painful to move, and when I coughed I thought actual body parts had come off it hurt so bad. 
So I called the PA at Huntsman and told her what was going on.  She said this.......

(Read with enthusiastic voice)
"Yea, people have different reactions to the neupogen.  They are a lot like flu symptoms, but the good news is it means it's probably working!" 

ummmm.  OK.  But I was laying there feeling like I really, really might just die.  And at times thought I would welcome it, just to get a little relief.  Instead, I picked the phone back up and called the PA back.  I told her I was coming up there.  I knew once they saw me they would know how sick I was and want to immediately make me better. 
   When I got up to Huntsman they checked me in and then asked me to sit in the waiting room.  I told them I was too sick to sit....I needed a bed to lay down  RIGHT NOW!  (It was all I could do to ride in reclined car seat for 40 minutes to get there!)  The receptionist jumped out of his chair to go find me a bed to lay down.  (He could obviously see how sick I was).
   The weird thing is, even when they saw me in person, they did not realize how sick I was.  They had me take stuff for nausea, they hooked me up to fluids and let me recline in their chair for a little.  Then they said to go ahead and go home and to come back and 7am for the apheresis catheter surgery (port used for harvesting).  I told them NO.  I'm not going home this sick.  I needed to stay there are be cared for because this was not normal to be so very sick.  They said....

(Same voice as before)
"Yes, this is normal.  But it's a good sign that you're so miserable because you might be able to start collection tomorrow with your body having such a good reaction.  Oh, and we close at 5 so you do have to go home". 

So I left.  Still sick.  But I was starting to feel like I could try to eat something.  So I told my mom I wanted a cheeseburger from Sonic.  She tried to talk me out of it several times  ( "You really don't want a cheeseburger from Sonic.  There's no way that could sound good!)
But somehow, that's exactly what did sound good.  And when you're nauseous it's always best to eat what sounds good to you because then you'll probably hold it down. 
   When we got home I went to lay down.  I was just so worn out from throwing up all the way home.  And the weird thing is, I only got one bite of that cheese burger down.  So here we are...aalmost caught up.  I'm literally on deaths door.  Let me just add, I've been through a thing or two the last few months, so when I say I was sick, I mean it.  I'm emphasizing this for 2 main reasons:
1) If someone comes across my blog and they're are about to go through this type of thing, I don't want them to be surprised, and
2) for your sympathy!  (mostly this)

So now, Thursday morning.  We got to Huntsman at 7am for labs.   While I was having the labs drawn my mom just kept telling the nurse..."  Can you believe she wanted to stay here for the night, and then can you believe she wanted a Sonic Cheeseburger."  Well, while they were chatting it up like long lost friends from high school, do you know what I was doing??  Throwing up.  oh, and having blood drawn. 

Next I was off the have an x-ray and CT of my face because I think I had convinced them that my face was going to explode  (those came back fine somehow.  They did show some congestion.  They suggested a netty pot.  I was're kidding, right?) 

Then I was off to Radiology to have my apheresis catheter put in.  At first I dreaded this part, but by this point, I COULD NOT WAIT to get under that conscience sedation.  I quickly made friends with the nurse that would be administering them.  I told her to put as much as she needed in my IV so I could go to sleep and get some good , good rest.  She just laughed.  But she must've done it because I woke up 3 minutes later and they were done.  My mom came into recovery and said it took 2 hours (what??) and there was great news.  My labs were back, and  hey would start to harvest that day!

Harvest day, Hooray! 
So, next I go back up to BMT infusion room.  And this was the process:

I laid in a bed (and fell asleep).  While I was asleep a stem cell technician named  T hooked me up to this machine called apheresis machine which would circulate all of the blood in my body about 4 times.  While it was circulating it would spin the blood and separate and extract all the stem cells (which is the red liquid collected in that IV bag).   Do you see how T is smiling in that picture??  She said it was because she saw how sick I was and thought I would be able to collect a lot of stem cells in one day.  Possible meeting my goal of 5 million and then be one day.  I wasn't smiling at this point because I was asleep.

This is what the end of day one looked like:
my very own cute stem cells

Later that night T called from the lab and said we only hit about 3 1/2 million.  But I was fine with going back because I had slept most of that day away, and I was starting to feel a little bit better by this point.

So day 2 of collection (today) I went back up at 7am.  I started collection again, only today I was awake the whole time.  I was able to get to know my nurse better (nurse extraordinaire) and my stem cell technicians were A and A  (we called him Oscar all day, just for fun). 
By, the end of the day I had collected enough stem cells to be done. 
Total stem cell collection for 2 days
bdbdbdbdbdbdbdbbdbdbdb  (drum roll)
8.3 Million
ummm yea.  I hit the goal, and then went a little over cuz that's how I roll!

Those little stem cells are in a nitrogen freezer at about -150 degrees and will be stored indefinitely.  And the truth is....I hope I never need them! 

Here's some pics.  (I've withheld real names for their privacy) This is just a few of the wonderful people that took care of me over the last few weeks.
K.   Driver, Hostess, Cook, Cleaning lady, Care taker, etc.  (also known by me as MOM)

A- the Supervisor, and A the Newbie (he's the one we called Oscar)

E.  Nurse Extraordinaire.  She needs a raise -Stat!

A.  The best MA
(Who were you again?)

My family is driving down tomorrow.
I'm so excited to see them!   ~♥

Monday, January 24, 2011

In the FIGHT and Day + 7

So, I would not say I'm a Cher fan particularly,  but have you ever heard something that just resonates with you??  This was one of those songs.  I think anyone who has had to Fight  their way through anything will be able to relate to this.   This week is a fighting week.  I'll be glad when it's over! :) 

Click Here to Listen

Here's to hoping whatever FIGHT you may be in right now, you're kicking butt too!

Friday, January 21, 2011

Day +3

Three days past chemo.  Yay.

I was curious to see what chemo would be like without the Neulasta shot.  I've always associated a lot of the side effects after chemo to the Neulasta shot.  Well, it turns out, I was still miserable  (imagine that).  I haven't had the really bad aches, but I still have been shaky and a little nauseous.  I really think the one of the worst parts is the steroid (Prednisone, the "p" in CHop).  I have to be on that until 5 days after chemo (which will be Sunday).  I'm always so glad when that part is done.
   I will have a home health nurse start coming on Sunday (day +6) to start the neupogen shots.  She will come and give me a shot on Sunday-Wednesday.  And then Thursday I will go back up to Huntsman to start testing to see if I have enough stem cells in my blood stream to harvest.  Best case scenario is they will start to harvest on Thursday of Friday, and I will be done by next weekend.  I am planning on going with best case scenario.  I'm ready to be done with this part. 
   Even though I talk to Lar and the kids every day, I just can't wait to see them.  In some ways this last week has gone by fast, and in other ways being sick just seems to drag on. 
   It has been very nice being able to stay at my mom's house and be taken care of.  And a special thanks to Tom for giving up his iPad all week and letting me take it over :) 
  Thanks for checking in, and thanks again for all the prayers! ~♥

I'm so lucky to have my own healthy stem cells available to harvest.  It will make it so much easier in the future (if I ever do need a transplant) to use my own stem cells.  We have a goal set to harvest:
5 million cells. 
I problem! :) 

Wednesday, January 19, 2011

Chemo Day Round 5

Yesterday was Round 5 chemo day at Huntsman.  My mom and I went up at 8am for Labs and to see Dr. Glenn.  We were not able to see Dr. Glenn because she was held up in a meeting, but that was fine because what I really needed to see her for was to ask her about the pain in my neck.  But, that pain is gone now.  Phew!
   So I went in to the infusion room and started the chemo.  It ended up being the fasted infusion I've ever had.  It was completed in one day, and it only took about 5 hours.  I think this is partly due to the fact that my body is used to the Rituxin now and can tolerate it being infused pretty quickly. 
    I wondered if there would be any major differences at the infusion center in Huntsman as opposed to St. Mary's where I normally go.  The infusion rooms were fairly similar.  Large over sized recliners lined up throughout the room.  They both have one wall  that is all glass looking outside  (the Huntsman's one is over looking the mountains-gorgeous).  But one thing I noticed is the age of the patients.  At St. Mary's I am  usually-by far-the youngest patient there.  Where at Huntsman, there were all ages. 
    Halfway through the day a lady came and sat right next to me.  She had her 2 daughters with her.  She had endometric cancer and had been through chemo several times.  She said at this point her cancer was considered "chronic" and she would be on chemo to control her disease indefinitely. 
    She still works full time and seemed full of energy.  Her daughter says she is a total "type A" go getter personality.  I would definite call her a fighter.  She works as a nurse at BYU University.  It was so nice to chat with her and her daughters.  She was truly full of positive energy, and you can't help but feel that!
    I fell asleep toward the end of my treatment.  And then we came home, had dinner and then I feel asleep again.  I went down to bed at 11pm and slept until 9:30am.   When I woke up I felt pretty good.  I wondered how it would be having chemo without the Neulasta shot right after, and so far it seems like all the achy and pain I get from chemo is from that Neulasta shot.  But even though I feel OK, this week is when my immune system will be at its lowest so I will be finding things to do around the house and staying in.
   I'm going to start working on my digital scrapbooking again and trying to get caught up on that.  It's usually hard to find the time to do that, but this week all I have is time. 
   I will be starting my Neupogen shots on Sunday.  A Home Health nurse will be coming to my house to give them to me, which will save me the 45 min drive to Huntsman every day. 
   Until then, I will just continue to rest and count down the days until this process is over and I'm that much closer to the end!  HOORAY!  

Monday, January 17, 2011

Days - 3,2,1 and a Dream

I'm combining Saturday, Sunday and Monday because I was busy those days, but not with medical "stuff".  Here's what I was busy with:

Saturday morning I had an appointment at Elementz Salon & Spa in Draper for a massage.  I was hoping it would help my neck, but I was also looking forward to doing something relaxing.  I got ready for the massage and the room was so peaceful and the massage table was so comfy.  She had me start by laying on my stomach so she could start on my neck / back.  As I laid there I felt tense and she even at one point asked me to stop clenching my fists and relax (I did not realize I was that tense).  But then it dawned on me, the last few times I've had to lay like that was to prepare to have some type of painful procedure (spinal tap / bone marrow biopsy).  So I had to consciously tell myself to relax.  After that, I did relax and it felt wonderful.  Debra is my moms massage therapist and she did a great job.  If anyone in the valley is in need of a good relaxing massage, you should absolutely try her.  She is in the Elementz Salon & Spa right off of I-15 in Draper.  She's in the corner of the strip mall over by Smith's.  It's so worth it!!  Plus, I think she's running a $50 for one hour special through January.  So, so worth it!!!  
   So now, I feel like a lot of tension in my back and neck are gone.  But I do still have that nagging pain on one side of my neck.  I think tomorrow I will ask Dr. Glenn about getting a CAT scan on my neck.  If for nothing else, just for piece of mind.  
     So then, we went to see a play at Desert Star Playhouse in Murray.  It was called "Back from the Future".  All the plays there are spoofs on other movies, and loosely based on them with a huge dose of "Utah culture" humor thrown in.  It was so funny. 
   And then Sunday, I wanted to go to Sacrament with my mom, but we realized (at 9:45am) that her ward had switched to 9:00am.  So we just went to Relief Society.  It was a great lesson on fasting, and there were lots of ladies there so happy to see my mom.  They all wanted to know if there was anything they could do to help.  They also said as a Relief Society they had fasted for me.  It is so humbling to have so many people care for me and my family.  It makes me so proud to be a part of this church. 
   My little brother and his wife came over last night and made dinner.  It was fun to see them and their 2 little girls.  But it really made me miss my kids.  They absolutely love to come to Utah and see their cousins.  But one thing that has helped me TREMENDOUSLY is one word :    S K Y P E

We set up Skype at my house and at my mom's house.  So if the kids ever need to talk to me, or I need to talk to them...we Skype.  It's made it so the kids can still see me and I can see them.  Last night we were Skyping and I was watching the kids just play and wrestle on the floor (normal stuff, as if I were there), and then Lauren took the laptop into the kitchen and I walked her through making some homemade icing for a cake she baked. 
   We are able to read scriptures as a family, and have family prayer together, all thanks to Skype.  It truly has been a lifesaver being able to be a part of some of our everyday activities, and see each other as opposed to just talking on the phone.  YAY FOR SKYPE!!!

Today has been a relaxing day  (and by that I mean I'm still in my pajamas).
I've been going through some old treasures my mom has from when I was little.  I just might post some old cheer pictures, dance pictures and pics of me when I was Lauren's age.  Man, I thought I was cool!  Wasn't blue eyeshadow and mascara cool?  Oversized sweaters? Acid washed jeans?  No??
I think they were very cool back in the late 80's. 

Today being Martin Luther King Day, I was thinking about "dreams".  My dream at this time is to get through the next month, and then have a fresh start with my health.  To be able to be in control and feel better than ever.  My dream is to look back at this time in my life and realize how much of a learning opportunity this was for me and my family.  My dream is that we will have learned all that we needed to and are better people because of it! 

Friday, January 14, 2011

Day -4 and a Pain in the Neck

Day -4

I woke up this morning with a bad headache.  I've also had a pain in the back of my neck for a couple of weeks.  This morning at 4am I woke up and worried that the cancer was back and that is what was causing the headache / pain  (you know how unreasonable things are in the middle of the night?)
It is completely unreasonable that my cancer is back since I'm still right in the middle of chemotherapy, and I have a PET scan showing complete remission.  But for some reason, I think it will be a while before every ache and pain I feel will send my thoughts to "worse case scenario" and I will have to talk myself back to reason. 
  I think when you've had something (like cancer) or some other form of illness, or trial for that matter, it's completely natural to have fear.  But here's what I know:

"Faith and Fear Cannot Coexist.
One gives way to the other."
So my personal goal as I continue to go through this hard time in my life is to Choose faith! 
Faith that my Heavenly Father is watching over me, and I will be OK no matter what. 

So, this morning I had 2 appt's at Huntsman.  The first was a history and physical, and the second was a BMT consult.  Both appointments ended up being a little redundant.  They were both basically going over things that had already been discussed in previous appointments.  But what I did learn is how careful they are to make sure I know exactly what lies ahead for me in the process.  And I think I do.  I know it's going to be a hard couple of weeks.  But I also know there is a lot a person can endure physically, and I have the end goal in sight. 
    A month or so ago I came across a story as I prepared a lesson for the Young Women in my ward.  I'm so glad I read it because it really helps strengthen me.  This is the story:  

There was a group of women in a Bible study on the book of Malachi. As they were studying chapter three, they came across verse three which says: "He will sit as a refiner and purifier of silver." (Malachi 3:3) This verse puzzled the women and they wondered what this statement meant about the character and nature of God.
One of the women offered to find out about the process of refining silver and get back to the group at their next Bible study. That week this woman called up a silver smith and made an appointment to watch him at work. She didn't mention anything about the reason for her interest in silver beyond her curiosity about the process of refining silver. As she watched the silver smith, he held a piece of silver over the fire and let it heat up. He explained that in refining silver, one needed to hold the silver in the middle of the fire where the flames were hottest as to burn away all the impurities. The woman thought about God holding us in such a hot spot--then she thought again about the verse, that he sits as a refiner and purifier of silver.
She asked the silver smith if it was true that he had to sit there in front of the fire the whole time the silver was being refined. The man answered that yes, he not only had to sit there holding the silver, but he had to keep his eyes on the silver the entire time it was in the fire. If the silver was left even a moment too long in the flames, it would be destroyed. The woman was silent for a moment. Then she asked the silver smith, "How do you know when the silver is fully refined?"
He smiled at her and answered, "Oh, that's easy--when I see my image in it."
If today you are feeling the heat of the fire, remember that God has His eye on you.
Author unknown

When I asked my oncology nurse about the "pain in my neck" she confirmed that it would be highly unlikely that the cancer is back.  She said I had probably just slept wrong or kinked it somehow.  So my mom called her massage therapist and I have an appointment tomorrow morning.  I'm sooooo looking forward to that! :)

I love this talk about Faith and Fear

Thursday, January 13, 2011

Day -5 and Treasures

Today is called ....Day -5

Today is 4 days from my next chemo treatment, and chemo day is called day zero.  Whenever you deal in "transplant" terms, all the days are numbered by what you will do that day.  Today I got my schedule for the rest of the month and I will be doing "medical"  things up until day +15 which will be Feb 4th or 5th.  So I'm going to try to blog what happens each day.  I have 2 reasons for doing this.
#1  So I can look back and see what I did when
#2 So someone else going through something like this will know what to expect.

I have read so many blogs of people going  through something very similar to what I'm going through.  It has helped me so much to be able to see how things went for them, and also to get advice from them. -5. 

My mom and I went to Huntsman at 8:30 this morning.  I first had a chest x-ray (easy), and then I had Labs (not easy).  I expected they would just use my port to draw all the labs.  But when I got back to start the draw, the RN told me 2 of the vials needed to be drawn from my arm (there were appx 20 vials total), and the rest could be drawn from my port.  So right there I knew...2 pokes.  After she drew from my port, she poked my arm and filled one vial and stopped.  So, that meant she had to try my other arm (3rd poke).   After labs we went to another room to wait for an EKG (super easy).  But while we waiting the nurse came in and said the lab needed to draw 2 more vials (4th poke)  REALLY??  I'm not really afraid of needles and being poked (I've had worse than that, trust me), but I hate when I start to feel like a pin cushion.   This was the end of day -6. 
  We then called my Grandparents to meet us at one of my fav spots downtown on 7th and 4th for lunch.

You have never had Utah fry sauce 'til you've had Hires fry sauce.  Right Utahns????
While we ate lunch my Grandpa handed us a big manila envelope.  They had been going through some old papers, and had some stuff for my mom.  What was inside was nothing short of absolute TREASURES.

It was full of letters my Great-Grandpa Bill had written to my Great-Grandma Mary while he was on his mission.   Here's why I think these are such treasures:

My brothers and I were very, very close to my Grandma Mary.  We spent a lot of time with her and my Grandpa Bill.  They had a tiny house in South Salt Lake off of 33rd South next to the Jordan River.  They had horses, a barn and lots of property.  They had a huge pear tree, a huge evergreen tree, and a tons of places to roam and explore.  I have wonderful memories of being at their house for holidays or just for regular days.  In the summer we would have bon fires in an old wheel barrow and roast marshmallows.  And in the winter we would make snow forts. 
  It was always so apparent to us the love and respect my grandparents had for one another.  My Grandpa Bill was a very intelligent man that knew the scriptures by heart.  He would sit in "his corner" of the living room in an old wing back chair, and pull the piano bench over as a make shift table and read scriptures and write for hours on end.  You could tell by the twinkle in his eye when he looked at my Grandma the love he had for her.  They were such a good example to us of what a loving marriage looked like.
   When I was a very young girl, my grandpa Bill had surgery.  During this surgery there were some complications, and it triggered Alzheimer's.  He progressed quite rapidly, and forgot a lot of the things / people he knew; although he always knew Mary.  Most of the years I knew him he was very forgetful.  All the time we spent at their house, he never really knew who we were.  He never remembered our names, and mostly just wanted to be left alone.
   Before this,  he was very active in church, and at one point served as the Bishop of his ward.  He knew lots and lots of people.  But when they would stop by, he would just sit in his chair and look away.  He could not remember them at all. 
  I remember people always talking about what amazing man my grandpa Bill was, and what a great memory he had.  He was an eloquent speaker, and was asked to guest speak several times at fire sides and conferences.  But I never knew him this way. 
  It was about 10 years after he was diagnosed with Alzheimer's before he passed away.  Mary took care of him lovingly the entire time., when I opened the first letter, I started to laugh because it turns out..he had a very  funny sense of humor as well.  He was so in love with Mary, and pleaded for her to wait for him while he served his mission.  The few letters I've read show quite a different man than I remember my Grandpa to be, but they are exactly the man I knew he was. 
   In one letter he says to Mary:

"Mary, I don't mind if you go on dates and have fun.  I want you to enjoy yourself.  I just don't want to get a letter like Elder McGee got from his girlfriend that read
'Not to hurt your feelings, but next time you write me please address me as  MRS. '
So please have fun Mary, but don't send me a letter like that".    :)

So funny.  I'm sure you know what I'll be doing the rest of the day!  I can't wait to curl up on the couch with my stack of treasures and get to know my real "Grandpa Bill". 

Monday, January 3, 2011

My New Year Starts in February ♥

Hunstman Cancer Hospital

Bittersweet.  One more treatment down (the sweet part), two more to go (the bitter part).  I guess I really shouldn't complain, because remember....the treatment is working !
   I had treatment last week and had the usual symptoms.  I sort of know what to expect now.  I guess that's what happens.  Today I'm feeling quite a bit better.  I'm was able to get quite a bit done, but still desperately need to get my Christmas decor down.  Does anyone else go through that?  As soon as the New Year is here, I feel like I need to start with a clean house.  I'm not looking forward to taking down all the decorates...especially the awesome tree Derrick put up for me, but I know it's inevitable.  But now I'm on a time schedule because I will be spending the last 2 weeks of January in Utah.
    I will go down next week and have all my pre-tests done (EKG, lung test, labs, etc, etc).  And then I will have my 5th chemo treatment at Huntsman.  After that treatment I will take Neupogen shots twice a day for 4 days (sort of like Neulasta-stimulates the bone marrow and forces it into my blood stream), and then I will have 2-4 days of stem cell harvesting.  Then I will come back home to have one last chemo treatment.  YAHOO!  I can't wait.  I just might have hair by this summer. :)
     I did (obviously) get my bone marrow results back and they show NO SIGN OF CANCER!  As hard as it's been to go through chemo physically and mentally, I'm so thankful to have the cancer gone.  My "New Year" for me will start in February where I will be looking for some new things to add to my "health regime".  Some of them will include some natural approaches to keeping the cancer gone.  I've had lots of wonderful friends with lots of ideas, but I am always looking to try new things.  Let me know of you've heard of anything that is a natural anti-cancer.  I would love to have this cancer stay gone for a long, long time.
   As soon as my last chemo is done (Feb 7th) I will be starting a 2 year Rituxin maintenance plan.  Basically I will have a 6 hour injection once a week for 4 weeks, every 6 months for 2 years.   Confusing??  yep.  Having the Rituxin alone is not a big deal.  Besides being a little time consuming, it does not have the harsh side effects that chemo does.   It is just another precaution in keeping the slow-growing cancer away.
   I know I've made it very clear I'm cancer free...but I probably should make it clear that my cancer (Non-Hodgkin's Lymphoma) is not curable.  It can come back at any time.  BUT>>>>> it can stay gone too.  And that is what I will choose to focus on.  Through faith, prayer and being proactive I truly believe this cancer will stay gone.  But having the clean stem cells in "the freezer section" at Huntsman will be a good back up plan just in case.
   Even though I'm looking forward to going down to Salt Lake and getting past the next phase of my treatment, I'm so sad to leave my kids behind.  Larry will be staying home with them to help them keep their routine (school, etc).  But I hate the idea of being away from my kids.  Although when I look at things on a much bigger scale, this is such a short period of time.  I hope it goes by fast.  I plan on getting lots of loves and kisses before I leave, and twice as many when I get home.

Have I mentioned lately how wonderful my husband is?  He has not missed one of my appointments / treatments.  He takes care of me always (and that's not always easy).  I'm a lucky girl!